My name is Lucy Watts MBE and I am 22 years old. I have a number of complex conditions which mean I am disabled and life-limited and in receipt of palliative and hospice care. I am completely wheelchair bound but spend most of my time in bed, am fed into my bloodstream via a line in my heart, and have other bags and tubes which all keep me alive. Despite my conditions I do a lot of charity work, writing blogs, articles and forewords, giving speeches, attending events, and appearing in videos and on TV and radio. I've spoken in Parliament and at the Department of Health. I work closely with 4 core charities, but am connected and work with many others. I also have my own blog with over 194,000 views (www.lucy-watts.co.uk). For my charity work I was appointed Member of the Most Excellent Order of the British Empire (MBE) in the 2016 New Years Honours for my services to Young People with Disabilities. I'm also an HSJ Top 50 Patient Leader and Jack Petchey and Diana Award winner.