Adapting. Thriving. Changing. Growing. Facing the unknown every waking day. This is my story, and it is my desire that somehow you find encouragement and connection, as I share the inside world of being a Mom with a very severely disabled son. This is the journey of life with a child who was born with severe disabilities, and how we are making our way through the ups and downs. Sharing humor, love, encouragement, and tears... come with me as I carry my son through life... because I am his Mom, and there is nothing more important than that. Daniel was born with a rare brain malformity. Every day is a new step in the journey, find joy in the journey! Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure! ...... Julie Hasselberger